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Privacy Policy

Last updated: October 21, 2026

1. Our Commitment

C3 Glomerulopathy Canada respects your privacy. We handle personal information in line with applicable Canadian privacy law, including the Personal Information Protection and Electronic Documents Act (PIPEDA) and Québec's Act respecting the protection of personal information in the private sector, as amended by Law 25.

This policy explains what we collect, why, who we share it with, how long we keep it, and the rights you have.

2. Person in Charge of Personal Information

C3 Glomerulopathy Canada has delegated responsibility for protecting personal information to its webmaster:

  • Name: Kevin Reniers

  • Title: Webmaster, C3 Glomerulopathy Canada (Myelin & Associates Inc.)

  • Email: kevin@myelinassociates.ca

  • Mail: 118 James St N, Suite 200, Hamilton, ON L8R 2K7

Contact this person with any question, request or complaint about your personal information.

3. Information We Collect

We collect only the information we need for the purposes listed in Section 4.

  • Network membership form: name, email address, professional designation, specialty, institution and province.

  • Contact and collaboration forms: name, email address and the content of your message.

  • Website use: technical information such as IP address, browser type, device type and pages visited, collected through cookies and similar technologies (see Section 7).

  • Subscribe form: email address, to send you updates about C3G Canada research, resources and activities.

We do not knowingly collect personal health information. Please do not submit identifiable patient information through this website.

4. How We Use Your Information

We use personal information to:

  • review and process network membership applications;

  • respond to enquiries and collaboration requests;

  • send network updates, where you have consented (see Section 8);

  • operate, secure and improve the website;

  • meet our legal obligations.

We will not use your information for any other purpose without your consent, unless the law permits or requires it.

We do not sell, rent or trade personal information.

5. Sharing Your Information

We share personal information only:

  • with C3 Glomerulopathy Canada’s leadership and steering committee, as needed to administer the network;

  • with service providers who help us run the website, such as our website host;

  • when required by law.​

We do not share personal information with our sponsors.​

6. Service Providers and Storage Outside Québec

We use the following service providers, which may store or process personal information on our behalf:

  • Wix.com — website hosting, forms, site database and built-in site statistics (Wix Analytics)

  • Google Workspace — email

  • Google Analytics 4 — website analytics, only with your consent

  • Myelin & Associates Inc. — website management and administration on behalf of C3 Glomerulopathy Canada

These providers may store information on servers outside Québec and outside Canada, including in the United States. Information stored there may be subject to the laws of that jurisdiction.

Before transferring personal information outside Québec, we assess whether it will receive adequate protection. We require our service providers to protect personal information and to use it only to provide services to us.

7. Cookies and Tracking Technologies

Our website uses:

  • Essential cookies, which are needed for the site to work and cannot be turned off;

  • Analytics cookies, which help us understand how the site is used.

Analytics cookies and any other technology that could identify, locate or profile you are turned off by default. They are activated only if you accept them in our cookie banner.

You can change your choice at any time through the cookie settings link in the website footer. You can also manage cookies in your browser settings, although some features may not work if essential cookies are blocked.

8. Communications

If you join the network and agree to receive updates, or subscribe to updates through our website, we may email you about network activities, research, events and resources. You can unsubscribe at any time using the link in any email, or by contacting the person named in Section 2.

9. Retention and Destruction

We keep personal information only as long as needed for the purposes in Section 4, or as required by law.

  • Membership information is kept while you are a member, and for two years after membership ends.

  • Enquiries and messages are kept for up to twelve months after we respond.

When information is no longer needed, we securely destroy it or anonymize it.

10. Consent

We ask for your consent when we collect personal information, and we explain the purpose at that time. Consent is requested separately for each purpose, such as membership review and email updates.

You may withdraw your consent at any time, subject to legal or contractual limits. If you withdraw consent, we may not be able to provide some services, such as processing a membership application.

11. Your Rights

You have the right to:

  • Access the personal information we hold about you;

  • Correct information that is inaccurate, incomplete or out of date;

  • Withdraw consent to our use of your information;

  • Request deletion of your information, where we are not required to keep it;

  • Data portability: receive your information in a structured, commonly used technological format, or have it sent to another organization;

  • Ask us to stop disseminating your information, or to de-index any hyperlink attached to your name, where dissemination is unlawful or causes you serious injury;

  • Be informed of the personal information we hold, how it is used, and who has access to it.

To make a request, contact the person named in Section 2. We may ask you to confirm your identity. We will respond within 30 days, free of charge.

12. Security and Confidentiality Incidents

We take reasonable administrative, technical and physical measures to protect personal information from loss, theft and unauthorized access, use or disclosure.

If a confidentiality incident occurs, we will act promptly to reduce the risk of harm and prevent it from happening again. If the incident presents a risk of serious injury, we will notify the people affected, Québec's Commission d'accès à l'information and, where required, the Office of the Privacy Commissioner of Canada. We keep a register of all confidentiality incidents.

13. Complaints

If you have a concern about how we handle personal information, contact the person named in Section 2. We will acknowledge your complaint, look into it, and respond in writing within 30 days.

If you are not satisfied with our response, you may contact:

  • Québec residents: the Commission d'accès à l'information du Québec (cai.gouv.qc.ca)

  • All other residents of Canada: the Office of the Privacy Commissioner of Canada (priv.gc.ca)

14. Intended Audience

This website is intended for healthcare professionals and adult members of the public. We do not knowingly collect personal information from anyone under 18.

15. Changes to This Policy

We may update this policy from time to time. Changes take effect when posted on this page, and the "Last updated" date will change. We will notify members by email of any significant change.

16. Contact Us

For any question about this policy or your personal information, contact:

  • Kevin Reniers
    Webmaster, C3 Glomerulopathy Canada (Myelin & Associates Inc.)
    118 James St N, Suite 200, Hamilton, ON L8R 2K7
    kevin@myelinassociates.ca

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